Tumour Support Scotland has compiled a bank of factsheets to answer some common questions that parents, teachers or schools may have about Nf1.

There is also information for children with the condition: advice and guidance on symptoms and behaviours, and navigating new phases of life, such as adolescence.

Please download any factsheets you require, and get in touch if you need more info.

Families we’ve helped

“The Tumour Support Scotland charity has been amazing to myself and my family. I don’t know where I would be without it.”

Tumour Support Scotland helps scores of families to understand and be proactive in dealing with the inevitable hurdles that come with Nf1. Click through to read a small handful of testimonials from our families. Together we have a strong collective voice and each other to lean on, talk to and share experiences with.

Support our children!

Have a question? Speak to us!