People we’ve helped

“You’re no longer alone”

An Nf1 diagnosis may have always been on the cards, or it may come out of the blue. Either way, when the bomb drops it can rock a family’s world. Tumour Support Scotland exists to make the journey easier, whatever stage you are at.

We provide information, we help you find answers and solutions. Through our network of families, and our events, you can tap into the knowledge and experience of people who have been where you are – who can help you navigate through problems and issues.

We welcome families from all over Scotland and beyond. We make our voices heard from the ground up, including in Parliament, as we raise awareness of Neurofibromatosis – the most common condition most people haven’t heard of.

“Thanks is nowhere near enough”

I don’t really know where to start. I can’t remember a time when I didn’t have funny lumps. Actually, I can it was a terrible time. I felt so alone but then Karen helped greatly with her wealth of experience with Nf1.

The charity has supported my daughter Katie, myself and my family so much I would need to write a book to tell all the help they have given us.

Katie was diagnosed at 8 years old and like most people I had never heard of Neurofibromatosis. I’m a very strong person, but even I could not have managed without the charity’s help.

From speaking to Katie about her condition, introducing her to other kids with Nf1 and always being there for her. Sometimes I think Karen knows her better than I do.

The support from the medical profession was purely health related but Tumour Support Scotland helped with so much more and I believe I could not have got this far without the charity. I see Karen like one of the family and a dear friend. Thanks is nowhere near enough for the help Tumour Support Scotland has given me and family. Keep up the amazing work as there are people out there need you so much.



“You are no longer alone”

Tumour Support Scotland charity has helped my daughter Rebeka and me in so many ways. We were introduced by another family in the area due to their kid having Nf1. It was a relief to know there are others who are affected, and you are no longer on this journey alone! Each child is affected differently, and no one knows what the future holds!

The Family Workshop Weekend is great for information and medical advice and just to be able to talk to other parents and share experiences! The charity caters to my daughters needs and gives one to one support as she is unique and has lots of different challenges! Cal the mascot is a huge hit and Rebeka would cuddle him all day and would love to bring him home! All kids are included, and all feel like one big family.

The days out have all been a massive success and we look forward to many more!

“100% a great charity”

The Tumour Support Scotland charity has been amazing to myself and my family. I don’t know where I would be without it. It has helped my family so much. One of my children and I have Neurofibromatosis type 1 (Nf1) and this charity has helped my family through the many struggles we face. They have also helped with educational support by visiting schools and helping teachers understand more about Nf1. They provided visual charts and a sensory box that helped my daughter with difficulties.

They’re always there for a chat if ever I have a problem; they’re always understanding. They organise trips and fun days for the kids, so the kids know they’re not alone. 100% a great charity.



“We have made friends for life”

Funny lumps has been a godsend to us, there’s no one in Elgin who has Nf1 or even knows about it (that included myself and family).
Karen has come to school multiple times to get things in place for Keane, I’m not sure where he’d be without her input.

From the first time we were in contact with Karen we were welcomed with open arms and that was eight years ago – we have made lots of friends for life.

Say Hi!